Monday, March 11, 2013

A life with CF

hello this is my first post.... maybe I should start out with well.. I have Cystic Fibrosis (CF), a genetic disease that affects about 30,000 people in the U.S.
 I was diagnosed in February when i had just turned 4 in November, I am now 12 going on 13.
 My mutation is the one that affects the lungs and pancreas and its pretty tough... but i get used to it.
I guess now you could call me a pro at taking pills.. haha.
I have many friends who care about me and love to support with finding a cure, I have also made a few friends who feel the same way with my same disease... Its nice having friends who know how I feel.
I was diagnosed at UNC Chapel Hill, I love my doctors and nurses there who care for me so much.
I have currently been fighting the Micobacteria lung infection which i had earlier on but it came back >:(
I have been on I.V. antibiotics for about 4 months now, But i know i can win this fight... I mean im over all a healthy kid.
well thats my first intro... later on i could go into a more detailed story when i get all the details! :)

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