Monday, March 11, 2013

my overall self

Hi there, Now im going to tell you about my self in general... As you already know I have CF but besides that, I am an extreme horse lover. I ride to at Mephibosheth Farms Angelic Riders, I have a favorite horse named buddy (not mine) he had to leave the farm for arthritis and i now ride a mare named sugar. My favorite type of horse is an appaloosa as you can see right there ------------------------->--->>>>>--->
Well that shows my cowgirl side..
I also have 1 dog.. a dachshund named scooter, who well is a big old man who is head strong but is a big old kisser he always tries to escape and LOVES rode trips! hes my big ol' cuddle buddy! :)






I also play soccer for Indian Trail Athletic Association (ITAA)  I love to hang out with my teammates and picking out a team name! My two brothers played before me and i took after them :)








This is me and one of my brothers, Donnie, I also have another brother named Douglas, Im also the youngest child but its not so bad :) I have a mom, (Cheryl) and a dad, (Seth) i do love my family <3 <3 <3






Well I guess that's all i have to say for now thats pretty much me! CYAAA

A life with CF

hello this is my first post.... maybe I should start out with well.. I have Cystic Fibrosis (CF), a genetic disease that affects about 30,000 people in the U.S.
 I was diagnosed in February when i had just turned 4 in November, I am now 12 going on 13.
 My mutation is the one that affects the lungs and pancreas and its pretty tough... but i get used to it.
I guess now you could call me a pro at taking pills.. haha.
I have many friends who care about me and love to support with finding a cure, I have also made a few friends who feel the same way with my same disease... Its nice having friends who know how I feel.
I was diagnosed at UNC Chapel Hill, I love my doctors and nurses there who care for me so much.
I have currently been fighting the Micobacteria lung infection which i had earlier on but it came back >:(
I have been on I.V. antibiotics for about 4 months now, But i know i can win this fight... I mean im over all a healthy kid.
well thats my first intro... later on i could go into a more detailed story when i get all the details! :)